Learning to Step Back Without Walking Away: Teaching our Kids to Self-Advocate for their IEP
- Jake Fishbein
- Dec 16, 2025
- 4 min read

I have a 14 year old who has had an IEP since kindergarten.
By now, special education is not something new or dramatic in our house. It is part of the background of our lives. Meetings. Plans. Accommodations that are supposed to smooth the rough edges of school so she can actually show what she knows.
Lately, though, something has shifted.
At the beginning of this school year, I asked for an IEP meeting. My daughter was starting an AP class, and I could feel the stakes rising before the first assignment was even due. Faster pace. More work. Less flexibility. I wanted to make sure the team was thinking ahead about how her accommodations would work in a class like that, not just whether they technically existed.
The meeting went well. The team was supportive. We talked through potential challenges and how support would show up. I left feeling relieved. We had done our due diligence. We were being proactive.
And then the year started.
Within a few weeks, the cracks began to show, not in a way that would be obvious from the outside. Her grades were fine. In some classes, they were even good. But at home, things felt different.
She was frustrated. Constantly.
She started saying she hated school.
She complained that her accommodations weren’t really being met.
When I asked what she meant, she talked about things that sound small if you haven’t lived this life.
Preferential seating that disappeared because a teacher decided it wasn’t necessary.
Headphones she uses to block out noise being questioned or discouraged.
Comments like, “Oh, you don’t need that,” said casually, as if the IEP were a suggestion instead of a plan.
They were quiet violations. The kind that add up.
And they were landing hard.
The Part That Makes This So Complicated
From a distance, someone might say, “But she’s doing well. Her grades are good.”
And that is exactly where this gets tricky.
Because what I was seeing at home was the cost of those grades. The exhaustion. The sensory overload. The frustration of constantly having to decide whether it was worth asking again for something she was already supposed to have.
When she talked about it, what came through most clearly was not just stress. It was doubt.
She did not feel like her teachers really understood what the IEP was for.
She did not feel confident pushing back when they questioned it.
She did not want to be seen as difficult or annoying.
At one point she said, “I just don’t think they get it.”
That sentence carries a lot of weight.
Because she is probably right.
Where Self Advocacy Meets Reality
This is where the idea of self advocacy starts to feel much more complicated than it sounds.
In theory, this is exactly the moment when kids should advocate for themselves. She knows her accommodations. She knows they help. She can articulate what’s not working.
And sometimes, a student speaking up directly is incredibly powerful. There are moments when a teacher hears it differently when it comes from the student rather than the parent. When it feels more real. More immediate.
But there is also a reality we cannot ignore.
When a teacher says, “You don’t need that,” what they are really saying is, “I have decided, in this moment, that your documented needs are optional.”
That is not something I want my child to carry alone.
So I find myself asking a harder question than simply “Should she self advocate?”
I am asking:
Is she being asked to self advocate, or to justify her disability?
Is this a moment to practice speaking up, or a moment where an adult needs to step in and reestablish the boundary?
What lesson does she take away if she advocates and nothing changes?
What I Still Want to Step In On
There are certain things I am not ready to hand over.
When accommodations are dismissed outright.
When the IEP is treated as flexible based on a teacher’s opinion.
When my child starts internalizing the idea that needing support means she is asking for too much.
Those are moments where I still believe parent advocacy matters deeply.
Not because my daughter is incapable, but because the system does not always respond fairly or consistently to students advocating on their own. Especially students whose needs are not obvious, whose grades mask the effort it takes to keep up.
At the same time, I do not want to send the message that she should stay silent and let me handle everything.
So I am trying to do both.
What Teaching Self Advocacy Looks Like Right Now
Right now, self advocacy does not mean telling her, “You need to handle this.”
It means sitting with her when she is frustrated and helping her put words to what she is experiencing.
It means talking through why certain accommodations exist, not just that they are listed in a document. Helping her understand that preferential seating is not about comfort, it is about access. That headphones are not a crutch, they are a tool.
It means helping her think about how to communicate that in a way the school will hear.
Sometimes that looks like role playing what she might say to her case manager.
Sometimes it looks like drafting a message together.
Sometimes it looks like me saying, “I’m going to step in on this part, and you can handle this other piece.”
And always, it looks like reminding her that needing support is not a personal failure, and advocating for it is not something she has to earn.
Sitting With the Tension
I still do not have a clean answer to whether I should call another IEP meeting right now or let her try to address it first.
What I do know is that self advocacy is not about parents stepping away. It is about parents slowly transferring skills while staying present enough to intervene when the system minimizes, misunderstands, or ignores a child’s needs.
My daughter is learning how to speak up.
I am learning when to amplify her voice and when to use mine.
That balance shifts. It depends on the teacher, the context, the stakes, and where she is emotionally at any given moment.
And maybe that is the most honest thing to say about self advocacy in special education.
It is not a destination.
It is a relationship.
One that keeps evolving as our kids grow, and as we decide, again and again, when to step back and when to step in.



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